Wiki Project Med: Difference between revisions

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# [[en:User:Owain.davies|Owain Davies]] - professional digital healthcare provider
# [[en:User:Owain.davies|Owain Davies]] - professional digital healthcare provider
# [[:en:User:Hydra Rain|Hydra Rain]] ([[:en:User talk:Hydra Rain|talk]])
# [[:en:User:Hydra Rain|Hydra Rain]] ([[:en:User talk:Hydra Rain|talk]])
# [[:en:User:AbhiSuryawanshi|Abhishek Suryawanshi]] Pharmacy student, and young scientist from India.


== Participant demographics ==
== Participant demographics ==

Revision as of 19:14, 25 November 2012

Wiki Medicine

Imagine a world
in which every single person
is given free access to the sum of all medical knowledge.
That's what we're doing.

Shortcut:
WM:WMMED
Key resources

Wiki Medicine (WMMED) is a proposed thematic organization first announced at Wikimania in 2012. The organization will promote the development of medical content on Wikimedia projects. Methods to accomplish this will be via forming collaborations with other like-minded organizations, giving talks / lectures at universities and other organizations, working to develop greater access to the medical literature for Wikipedians, among others.

Mission

To make clear, reliable, comprehensive, up-to-date educational resources and information in the biomedical and related social sciences freely available to all people in the language of their choice.

Strategy

This organization will not have any direct editorial control over the health care content of the Wikimedia projects themselves. We believe the goals of the Wikimedia movement are best achieved in collaboration with other organizations who share those goals, and we see Wiki Medicine's role primarily as an educational one, where we will provide advice and instruction to other like-minded individuals and organizations regarding how to contribute to Wikimedia projects.

Wiki Medicine will fulfill its mission in the following ways:

  1. Provide training to organizations and individuals so that they can contribute health content to Wikimedia projects
  2. Create, collect, process, and present the sorts of metrics which describe usage statistics and quality of health content on Wikimedia projects

While Wiki Medicine members may contribute health content themselves, they will do so not as members or representitives of Wiki Medicine but as members of the projects that host that content (Wikipedia, Wikiversity, Wiktionary, Commons, etc.).

Projects

Main article: Wiki Medicine/Projects

This organization will promote participation in English Wikiproject Medicine and equivalent projects in all languages.

Health organization outreach

Any organization which serves people who get information from the Internet has a stake in the quality of information on Wikipedia and related Wikimedia projects. For many demographics and for many topics, Wikipedia is the most consulted source of health information.

Health organizations who want to participate in Wikipedia projects to do health education outreach need the following:

  1. Presentations on Wikipedia and statistics of how people use Wikipedia
  2. Training materials to introduce them to aspects of Wikipedia that are of most relevance to them as new contributors. In many cases, health professionals' time is scarce and they appreciate first receiving key information on how they can contribute within their field
  3. A maintained and curated collection of scholarly literature describing the nature, scope, and quality of Wikipedia health content
  4. A point of contact for requesting conversations from members of the health community in Wikipedia on how their organization can connect with the Wikipedia community and learn to contribute content
  5. A community networking space
  6. A historical repository for collecting case studies about community experiences in developing health content on Wikipedia

Collaborations are currently being developed with the World Health Organization, Cancer Research UK, and the United States National Library of Medicine / National Institutes of Health. Efforts include issues surrounding copyright and the support of the creation of Wikipedians in Residence.

A number of presentations have been given globally regarding the significance of Wikipedia in Medicine including in Canada, the UK, India, Switzerland and Nepal.[1] A model presentation is available here under a CC BY SA license for others to use and adapt.[2]

Translation Task Force

The Translation Task Force is a project began on English Wikipedia in collaboration with Translators Without Borders to improve key medical articles via translation. A summary of the project is as follows:

  1. Identify the most globally important health articles on Wikipedia (a list is here)
  2. Improve them to "Good Article" or "Featured Article" status in English according to English Wikipedia criteria
  3. Once an article reaches at least good status, have it professionally reviewed
  4. Put the article in queue for translation into every other language in the world at Translators Without Borders, with emphasis on languages which do not have equivalent articles of good quality (another partner "Content Rules" is working on simplifying the content for simple English Wikipedia)
  5. Present the most comprehensive multilingual source of health information ever compiled to the world, for free, continually as it is being created

Wikipedia - journal collaboration

  • One reason some academics express for not contributing to Wikipedia is that they are unable to get the recognition they require for their current professional position. A number of medical journals have agreed in principle to publishing high quality Wikipedia articles under authors' real names following formal peer review. These journals include: Open Medicine, PLoS medicine, the Journal of Medical Internet Research and Open BMJ. Further details here.
  • There are certain articles which, although published in scholarly journals, could either be readily adapted into Wikipedia articles or preferably published verbatim as Wikipedia articles if they were appropriately licensed during publication. Some work has already gone into this concept; this project supports further efforts into reforming publishing standards so as to incorporate sharable media into Wikipedia as efficiently as possible.
  • General discussion on potential collaborations are taking place with the Cochrane Collaboration as described here.
  • In parallel to broader efforts to create a Wikipedia Library, efforts are underway to build relationships with scientific/medical publishing houses resulting in the donation of free and full access to their content for active Wikipedians. Partnerships with Credo Reference, HighBeam Research, and Questia Online Library have set a precedent for such relationships to be mutually beneficial: they provide visibility to the research databases and they give select Wikipedia editors direct access to the best available academic, scholarly, and professional reliable sources. Talks are ongoing with JSTOR and Cochrane Collaboration which have both expressed interest in joining The Wikipedia Library. Future targets include UpToDate, Elsevier, and Springer.
  • Possibly improving/creating medical {Find sources} templates, or creating a live feed of recent high-quality clinical guidelines or meta analyses to article talk pages.

Campus ambassadors to medical schools and health classes

There is an existing Wikipedia outreach program which sends Wikipedia ambassadors - "campus ambassadors" - to schools to encourage students and professors to incorporate contributions to Wikipedia projects into the learning curricula. This organization facilitates participation in the campus ambassador program for those participating in health-related education projects at universities.

Wikipedia Loves (Medical) Libraries

Wikipedia Loves Libraries is the name of an outreach program which helps librarians and the Wikipedia community work together to serve the needs of communities who use library and Wikipedia resources. This organization participates in the Wikipedia Loves Libraries program by promoting events at medical and health science libraries.

Research relations

The organization will be a point of contact for researchers who want to study the health information on Wikipedia. Many organizations need advice on how they can run surveys on the extent to which the public uses health content on Wikipedia. This organization will work with the existing Research Committee to assist researchers in getting the data and community support they need to be able to manage their own Wikipedia research at their own institution.

Since there is also precedent in the medical community of supervising human subject research, this organization will also participate in existing community programs for reviewing human subject research on Wikipedia. For example, if a researcher who is not a Wikipedian seeks to recruit Wikipedians for long interviews, this organization will be mindful of and participate in discussions about minimizing harm to and promoting benefit to Wikipedians who participate in such research and the Wikipedia community in general.

Consent review

In some cases a health care provider may take a photograph or other media of a particular patient to create a learning tool for discussing a medical condition with visible symptoms. Wiki Medicine may either mediate or arranges mediation of queries about whether such content compromises patient personal identification and/or raises privacy concerns. One way that this group might do this is verify the existence of a consent to release a photograph with the photographing doctor. Wiki Medicine also provides, collects and shares guidelines for health professionals who have media to share, such as photos or x-rays. Wiki Medicine promotes patient rights and safety in media sharing.

Political advocacy

Main article: Wiki Medicine/Advocacy

This organization advocates for free access to educational health material. When a political action may serve to increase access to health information through the Internet and especially through Wikimedia projects, this organization may endorse those actions in any country. More commonly, this organization publishes talking points and arguments that other organizations may use in their own activist efforts when they discuss policy with their lawmakers.

Name

We will be initially incorporating as Wiki Medicine if available until we get authority to use Wikimedia Medicine from the WMF.

Domains

Have currently purchased the domains wikimediamedicine.com and wikimediamedicine.org

Scope and territorial overlap with national chapters

  • The territory of activity is everywhere in the world where there are people interested in achieving our mission.
  • Initially the organization will be located in the USA but people from around the world can join.

Provisional board members

Positions on the board

  • President: sets and chairs meetings - James Heilman
  • Vice president: manages above when president not available - Jacob de Wolff
  • Secretary: Takes notes- Brian
  • Membership secretary: Manages membership - Anthony Cole
  • Treasurer: Takes financial statements - Doug/Rexx
  • Tax person: Takes care of taxes and yearly corporate renewal -Peter Coti

Process

The proposed by-laws are here - /Bylaws.

chaptercommittee-l@lists.wikimedia.org

Discussion

Meeting minutes

View meeting minutes here.

Email communication

Have created mailing list here but it is expect that most discussion will take place on meta.

Mumble

Useful communication program w:en:Wikipedia:Mumble

People interested

You will be notified from time to time as the project approaches or passes important milestones, such as the opening of the official membership list.

  1. Doc James (talk · contribs · email) 14:47, 16 July 2012 (UTC)[reply]
  2. Daniel Mietchen - WiR/OS (talk) 22:31, 18 July 2012 (UTC)[reply]
  3. Blue Rasberry (talk) 20:28, 19 July 2012 (UTC)[reply]
  4. Vinicius Siqueira (talk) 05:20, 28 July 2012 (UTC)[reply]
  5. LeadSongDog (talk) 17:33, 1 August 2012 (UTC)[reply]
  6. Rich Farmbrough 01:38 18 August 2012 (GMT).
  7. MistyMorn (talk) 23:39, 22 August 2012 (UTC)[reply]
  8. Anthony Cole (talk) (Australia) 00:48, 23 August 2012 (UTC)[reply]
  9. Kpjas (talk) 15:27, 23 August 2012 (UTC)[reply]
  10. --Adert (talk) 22:54, 23 August 2012 (UTC)[reply]
  11. Amqui (talk) 16:44, 30 August 2012 (UTC) (as an observer, may help periodically if you need someone on the ground in the Canadian Prairies)[reply]
  12. have no real extra time to be active ATM but intrigued. Casliber (talk) 01:02, 8 September 2012 (UTC)[reply]
  13. Biosthmors (talk) 15:19, 20 September 2012 (UTC)[reply]
  14. Scray (talk) 22:38, 29 September 2012 (UTC)[reply]
  15. Brangifer (talk) 05:28, 2 October 2012 (UTC)[reply]
  16. Andreas Werle (talk) 18:32, 2 October 2012 (UTC)[reply]
  17. Zad68 (talk) 17:34, 3 October 2012 (UTC)[reply]
  18. Ildiko Santana (talk)
  19. Other editors interested
  20. Pete F (talk)
  21. --RexRowan (talk) 08:18, 10 October 2012 (UTC)[reply]
  22. FiachraByrne (talk) 22:25, 13 October 2012 (UTC)[reply]
  23. Mikael Häggström (talk) 13:05, 14 October 2012 (UTC)[reply]
  24. Jane023 (talk) 19:03, 14 October 2012 (UTC)[reply]
  25. Andrew Davidson (talk) 06:52, 16 October 2012 (UTC)[reply]
  26. Mrjohncummings (talk) 15:59, 15 October 2012 (UTC)[reply]
  27. Ocaasi (talk) 19:29, 16 October 2012 (UTC)[reply]
  28. Helga Perry (talk) 13:52, 21 October 2012 (UTC)[reply]
  29. Rupertfawdry (talk) 14:16, 21 October 2012 (UTC)[reply]
  30. Leighblackall (talk) 01:06, 22 October 2012 (UTC)[reply]
  31. DGG (talk) 05:16, 22 October 2012 (UTC)[reply]
  32. Benjitheijneb (talk) 21:21, 25 October 2012 (UTC) (No medical experience, and not even in university yet, but I'll try to contribute where possible)[reply]
  33. Palma Marton Chatonnet (talk): biologist, translator (EN-HU), editor (EN,HU) 17:24, 26 October 2012‎
  34. ashashyou (talk · contribs · email)--Ashashyou (talk) 08:19, 27 October 2012 (UTC)[reply]
  35. GeneralBelly (talk) 19:39, 1 November 2012 (UTC) - Irish doctor, very interested in WP and medical education[reply]
  36. DrGaellon (talk | contribs) 22:56, 1 November 2012 (UTC) - Medical educator in NYC area, general internist/hospitalist[reply]
  37. Tito Dutta (Talk) 12:06, 2 November 2012 (UTC) (no relevant qualification)[reply]
  38. MaenK.A.Talk 18:29, 9 November 2012 (UTC)[reply]
  39. NCurse (talk) 20:49, 9 November 2012 (UTC), you can count on me![reply]
  40. --Ziphon (talk) 21:14, 10 November 2012 (UTC)[reply]
  41. UseTheCommandLine (talk) 03:04, 12 November 2012 (UTC)[reply]
  42. Mattopaedia Yes, Ive been a bit silent lately, but I'm still interested!. Mattopaedia Have a yarn 04:37, 12 November 2012 (UTC)[reply]
  43. Netha - Medical student from India, interested in medical education and public health.
  44. Owain Davies - professional digital healthcare provider
  45. Hydra Rain (talk)
  46. Abhishek Suryawanshi Pharmacy student, and young scientist from India.

Participant demographics

Participants come from a variety of countries, including:

  • Australia
  • Brazil
  • Canada
  • Egypt
  • France
  • Germany
  • Hungary
  • India
  • Poland
  • the United Kingdom
  • the United States